Creation and Governance of Human Genetic Research Databases by Organization for Economic Cooperation &

By Organization for Economic Cooperation &

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Human Genetic Databases”, Chapter 18, “Human Genetic Research Databases”. See also J. Kaye. and P. Martin (1999), “The Use of Biological Sample Collections and Personal Medical Information in Human Genetic Research, The Wellcome Trust, London, especially pp. pdf (accessed 9 May 2006). g. ), Populations and Genetics: Legal and Socio-Ethical Perspectives, Martinus Nijhoff, Leiden, CREATION AND GOVERNANCE OF HUMAN GENETIC RESEARCH DATABASES – ISBN-92-64-02852-8 © OECD 2006 47 48 – CHAPTER 2. HUMAN GENETIC RESEARCH DATABASES 2003; M.

The consideration is whether only these types of database should be considered HGRDs. In other words, is the element of containing information for “populations” or for large subsets of populations an essential criterion? A sub-element of this consideration is the issue of what constitutes a population. For example, the Estonian, Latvian and Icelandic projects aim to cover the populations within the jurisdiction of Estonia, Latvia and Iceland, respectively. Conversely, the GenomeEUtwin and HapMap initiatives aim to cover cohorts of twins from numerous jurisdictions and cohorts from selected jurisdictions, respectively.

Harding and C. McElroy (2003), “Genebanks: A Comparison of Eight Proposed International Genetic Databases”, Community Genetics, Vol. 6, p. 37. 16. David Cyranoski and Rachael Williams (2005), “Health study sets sights on a million people - Huge Asian project to track genes, lifestyle and health”, Nature, Vol. 434, No. 7035, p. 812. 17. One such project was launched by AutoGen, an Australian biotechnology company in collaboration with Merck Lipha, a subsidiary of Merck Germany, upon the signing of an agreement with the Tongan Ministry of Health in November 2000.

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